About

The Cure GM1 Foundation is dedicated to hope and to directly funding research for a cure for GM1 Gangliosidosis, a lysosomal storage disease that attacks the brain and spinal cord and is always fatal in children.  GM1 is a progressive…

Connect

The internet is an amazing resource to families with rare diseases.  There are many wonderful families who support each other.  Connect to others and learn more about those affected by GM1. Join the Facebook Gangliosidosis Group. Fill out the Cure GM1…

Donate

All donations are tax-exempt and we will send you a receipt for your tax records so long as the necessary contact information is provided. Approach 1: Donate Directly to the Cure GM1 Foundation Online Here’s our online form for donations….

News

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Cure GM1 September 2016 Update

Read the latest updates from the Cure GM1 Foundation below! Porter’s 4th Birthday Fundraiser in Auburn, Alabama The Heatherly family have been such amazing advocates for their son Porter who has infantile GM1.  We are so truly grateful for their…

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August 2016 Update – Big News!

Intravenous Gene Therapy Update AMAZING news! We recently received a detailed update on the progress of the Auburn/UMass GM1 intravenous (IV) gene therapy research program. Work is truly active towards the creation of a clinical trial in human children! The…

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Sweet Angels Song for a Cure

Please watch and share this amazing music video and song by Marilee Leishman written for her two sons Eli and Evan who suffer from GM1 Gangliosidosis Type 2. To Donate, please see this link on generosity.com: https://igg.me/at/O-Psh548uj0 To purchase the song,…

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Lenka’s Story of Hope – Lenka i Dobra Spółka

Thousands and thousands of miles away in Poland, a beautiful, sweet girl named Lenka suffers from GM1 Type 2.  Lenka was born on August 18, 2004.   Lenka’s early childhood proceeded normally and her sociable and bold personality emerged. At the…

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Ian’s Story and Mission for a Cure

Little Ian was just recently diagnosed this year with Type 1/infantile GM1.  Ian is a little fighter and his family has joined the fight for a cure! To donate in honor of Ian, go to CrowdRise to see his campaign….

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GM1 Families and Supporters Unite!

Wow!  Many families and supporters have come together recently to help Cure GM1!  We’re so incredibly grateful to you all!   Truly, thank you from the bottom of our hearts! This foundation is for all those affected by this devastating…

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