About

The Cure GM1 Foundation is dedicated to hope and to directly funding research for a cure for GM1 Gangliosidosis, a lysosomal storage disease that attacks the brain and spinal cord and is always fatal in children.  GM1 is a progressive…

Connect

The internet is an amazing resource to families with rare diseases.  There are many wonderful families who support each other.  Connect to others and learn more about those affected by GM1. Join the Facebook Gangliosidosis Group. Fill out the Cure GM1…

Donate

All donations are tax-exempt and we will send you a receipt for your tax records so long as the necessary contact information is provided. Approach 1: Donate Directly to the Cure GM1 Foundation Online Here’s our online form for donations….

News

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Sweet Angels Song for a Cure

Please watch and share this amazing music video and song by Marilee Leishman written for her two sons Eli and Evan who suffer from GM1 Gangliosidosis Type 2. To Donate, please see this link on generosity.com: https://igg.me/at/O-Psh548uj0 To purchase the song,…

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Believe – I Am Rare Original Design

Help support a cure and those who suffer from GM1 Gangliosidosis today by declaring that you are rare! The Cure GM1 Foundation is honored to release a new t-shirt design in collaboration with a friend and supporter who specializes in…

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Cure GM1 Foundation Family Liaison

The Cure GM1 Foundation welcomes Dee King in the role of Family Liaison.  Dee’s daughter Fiona passed away on December 23, 2015, four and a half years after the devastating diagnosis of infantile GM1.   Dee has graciously volunteered for Cure…

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Ian’s Story and Mission for a Cure

Little Ian was just recently diagnosed this year with Type 1/infantile GM1.  Ian is a little fighter and his family has joined the fight for a cure! To donate in honor of Ian, go to CrowdRise to see his campaign….

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GM1 Families and Supporters Unite!

Wow!  Many families and supporters have come together recently to help Cure GM1!  We’re so incredibly grateful to you all!   Truly, thank you from the bottom of our hearts! This foundation is for all those affected by this devastating…

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Pre-Release Good Dinosaur Benefit Screening

A Rare Disease Partnership Through a partnership with Global Genes and two other rare disease nonprofits, the Grace Wilsey Foundation, and the KCNQ2 Cure Alliance, we were able to organize a pre-release benefit screening of Disney/Pixar’s most recent feature film The Good Dinosaur at Pixar Animation…

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