The Cure GM1 Foundation is dedicated to hope and to directly funding research for a cure for GM1 Gangliosidosis, a lysosomal storage disease that attacks the brain and spinal cord and is always fatal in children.  GM1 is a progressive…


The internet is an amazing resource to families with rare diseases.  There are many wonderful families who support each other.  Connect to others and learn more about those affected by GM1. Join the Facebook Gangliosidosis Group. Fill out the Cure GM1…


All donations are tax-exempt. You will receive a receipt as long as contact information is provided. Approach 1: Donate Directly to the Cure GM1 Foundation Online Here’s our online form for donations. Approach 2: Mail the Cure GM1 Foundation a…



Holiday Tea for a Cure

You’re Invited! This event is a fun-filled family holiday tea at a beautiful historic location!  The building was designed by Julia Morgan and is located on the UC Berkeley Campus.  We used to always take Iris to San Francisco for…


October 2016 Cure GM1 Update

What an Amazing Month! The Cure GM1 Tongue Twister Challenge was launched and we’ve had an amazing response from many friends and supporters spreading awareness.    Please see the video and page about the challenge.  The challenge is going on…


Cure GM1 Tongue Twister Challenge

See the video and instructions below!  Together we can make a difference! How do I do it? More Detailed Instructions MAKE A VIDEO of yourself, your family, or a group of friends saying “GM1 Gangliosidosis”  5 times as fast as…


Lenka’s Story of Hope – Lenka i Dobra Spółka

Thousands and thousands of miles away in Poland, a beautiful, sweet girl named Lenka suffers from GM1 Type 2.  Lenka was born on August 18, 2004.   Lenka’s early childhood proceeded normally and her sociable and bold personality emerged. At the…

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Ian’s Story and Mission for a Cure

Little Ian was just recently diagnosed this year with Type 1/infantile GM1.  Ian is a little fighter and his family has joined the fight for a cure! To donate in honor of Ian, go to CrowdRise to see his campaign….

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GM1 Families and Supporters Unite!

Wow!  Many families and supporters have come together recently to help Cure GM1!  We’re so incredibly grateful to you all!   Truly, thank you from the bottom of our hearts! This foundation is for all those affected by this devastating…

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