Archives


Holiday Tea for a Cure

You’re Invited! This event is a fun-filled family holiday tea at a beautiful historic location!  The building was designed by Julia Morgan and is located on the UC Berkeley Campus.  We used to always take Iris to San Francisco for…

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October 2016 Cure GM1 Update

What an Amazing Month! The Cure GM1 Tongue Twister Challenge was launched and we’ve had an amazing response from many friends and supporters spreading awareness.    Please see the video and page about the challenge.  The challenge is going on…

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Cure GM1 Tongue Twister Challenge

See the video and instructions below!  Together we can make a difference! How do I do it? More Detailed Instructions MAKE A VIDEO of yourself, your family, or a group of friends saying “GM1 Gangliosidosis”  5 times as fast as…

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Cure GM1 September 2016 Update

Read the latest updates from the Cure GM1 Foundation below! Porter’s 4th Birthday Fundraiser in Auburn, Alabama The Heatherly family have been such amazing advocates for their son Porter who has infantile GM1.  We are so truly grateful for their…

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August 2016 Update – Big News!

Intravenous Gene Therapy Update AMAZING news! We recently received a detailed update on the progress of the Auburn/UMass GM1 intravenous (IV) gene therapy research program. Work is truly active towards the creation of a clinical trial in human children! The…

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Sweet Angels Song for a Cure

Please watch and share this amazing music video and song by Marilee Leishman written for her two sons Eli and Evan who suffer from GM1 Gangliosidosis Type 2. To Donate, please see this link on generosity.com: https://igg.me/at/O-Psh548uj0 To purchase the song,…

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Believe – I Am Rare Original Design

Help support a cure and those who suffer from GM1 Gangliosidosis today by declaring that you are rare! The Cure GM1 Foundation is honored to release a new t-shirt design in collaboration with a friend and supporter who specializes in…

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Cure GM1 Foundation Family Liaison

The Cure GM1 Foundation welcomes Dee King in the role of Family Liaison.  Dee’s daughter Fiona passed away on December 23, 2015, four and a half years after the devastating diagnosis of infantile GM1.   Dee has graciously volunteered for Cure…

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Cure GM1 Parent Conference Call

  Reminder that we have  a parent conference call tonight 5/16/16 at 6PM PST. The conference call access and directions will be sent directly to those who contact us. You can use the contact form to request the directions.

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Free Stationery with Donation in May!

This is a limited time offer! Offer ends 6/6/16. One free stationery/notebook per $25+ donation to this 501(c)(3) nonprofit, the Cure GM1 Foundation. Shipping within the continental USA only. No international shipping. Stationery will be shipped within the US at…

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